They say a picture is worth 1,000 words - well this is it - I don't want the yogurt and you are wearing it - and that I am right on the middle of the nose with one flick of the wrist - baby Cooper-Jay hit the spoon flying with the yogurt in it and I copped it - I had forgotten how to wear food but soon got back into the swing of things.
Well our lives will forever be changed since the birth of our beautiful baby Zoey Ruby-Rose (Cooper-Jay's baby sister) has Tuberous Sclerosis Complete a rare genetic disease which can be inherited if one parent has it but in her case it is a spontaneous mutation. This horrid disease allows non malignant tumors to grow on vital body organs like the kidneys, heart, eye and brain - all of which she has. The main concern is the brain and due to the fact that the tumors die and calcify electrical currents get blocked and cause little explosions which result in seizures - she has started at eight weeks. (I was hoping for an up dated picture of our little Zoe but the DVD my son Jason gave would not open!) The picture will have to wait for next time.
A week in Westmead Children's Hospital is a lesson in love given by the parents and amazing nurses and doctors, acceptance for parents and grandparents and a total new perspective on life. Seeing this apparently perfectly beautiful baby girl with electrodes covering her tiny head for an EEG - not once but twice, learning she is on a strong anti-seizure drug with the edict being given that from now on we all will follow the path her tiny body leads us truly makes one realise you don't have a choice but to be strong. When I consider my life is nearly over and what can I do to be there for her and her parents and please God let it be for a while! (One good thing has come out of this I have discovered I can still cook on a regular basis - I have become a real soup kitchen!
Zoey is home now, doing all the wonderful things a 9 week old baby does, smiling, laughing, gurgling, kicking and bring a wonderful joy to us all, always tinged with the sadness of reality - but today is a good day and we are grateful for that.
Our beautiful Harvey is growing in charm, looks and chatter - he is like a sponge soaking up everything he sees and hears being the total little mimic - this we have learnt he is very good at too!
On the work front which has taken a second place we are still all on track with CE 28 being just completed and now we are up to our next projects - we have three new quilts in the making and a new design CD coming along - and yes Peaches' Purses will be out by next week - it is quite a large project, but we know you will love it.
On that note I must away and get back to work, forgive me Erica I am trying to be faithful in my blog up dates, but life has thrown us all a curve ball and it is a little hard to catch at present, love you all Jenny.